::Griffblog::

Tuesday was supposed to be my clinic appointment to measure the bone growth. Last Sunday was the tentative 25mm goal point assuming the bone has grown as planned so the clinic appointment was already late.

What with all that happened over the weekend Tuesday just appeared. The appointment at St Peters was for 2.30pm and so just as we were about to leave the house at 1.15pm the phone rang. It was St Peters cancelling the clinic as the Consultant had just rang in sick!

So I was left in Limbo. If I stop turning the nuts and the bone has grown as planned it will begin to knit. Fine if the leg is the right length, not so good if it’s short. If I continue to turn I risk having the leg too long!

We tried calling our liaison Sister at St Peters on Wed and despite being promised a call-back, none came. called again Thursday and got through. The cancelled clinic has caused turmoil so the best advice they could give me is to turn the nuts twice a day rather than 4 times and I’ll be seen on Tuesday 6th, a full week later and 10 days after I should have stopped turning the nuts.

Apparently the bone rarely grows at the ideal 1mm/day and even if it is longer, the bone is still soft and so can be compressed back a bit, indeed this is often planned as otherwise when it settles and knits you lose a few mm of length.

So now we’re keeping our fingers crossed for Tuesday. Hopefully the bone will have grown well and we can have a date when the lengthening stops and it is all locked off. Then the consolidation/knitting phase can begin.

A huge problem for ilizarov and TSF frame wearers is clothing. Frames on the lower leg are perhaps slightly easier to cater for but troublesome nevertheless and femoral frames, being the largest and most bulky present a quite literally ‘huge’ problem.

As we had prepared long in advance we had purchased a couple of pairs of running shorts, the type with the slits up each side. The inner mesh lining was removed and we were relatively confident that underpants and these shorts would stretch over a frame. That was before I had the frame fitted!

When I awoke to see how big the frame actually was it was clear that we had underestimated the size. I managed to don pants and a pair of shorts with great difficulty and in the meantime Sue hastily modified a pair of shorts by cutting up the side and sewing on snap fasteners.

This made the shorts much easier to fit and so she then moved on to applying the same modification to underpants. No longer did I have to struggle to get them over the frame where they would catch on every nut and bolt!

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Ilizarov frame patients will be familiar with the daily ritual of pin site cleaning.

Every morning after removing old dressings and showering I have to clean all 15 pin sites using saline fluid and special polygon ‘lollipop’ cleaning sticks and any pin sites that are weeping or bleed have to be covered with a non-adhesive padded dressing.

Whilst I was in hospital this was no problem, I was provided each day with a kit of the fluid, lollipop sticks and dressings as required. And when I was discharged I was issued with a small stock of them to keep me going.

Back at home I researched the dressings and cleaning sticks I needed and it threw up some nasty surprises! The 5cm x 5cm Allevyn Non-Adhesive dressings cost £18 per box of 10. Even though I only have 5 pin sites that require dressing that is nearly £9/day for dressings alone or £270 per month!

The polygon lollipop sticks however, are only available in bulk packs of 300 and these cost £60+. I can’t be sure of the exact price as I can’t find anyone who sells to the general public.

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Well yesterday went quite differently to the way I had feared on Sunday! As many of you had predicted my fears were unfounded. The infection continues to improve and it’s so much better that we have now succeeded in applying a dressing to it, something that has not been possible at all since I had the op both because the frame is so tight against the skin and because it was so sore.

The Physio visit (which I had been dreading) went very well. I managed to walk quite some distance from the car park to the Physio Department at Frimley and instead of being chastised, as I had feared, for lack of progress, I was complimented on how much mobility I had given the frame and my being only 3wks post Op.

All the exercises they would normally offer, to mobilise my ankle and build up strength for walking and stairs etc they decided were superfluous as I have full mobility in my ankle and am already walking and managing the stairs. So I was left with some advice on increasing the mobility in my knee a little and have a return appointment in 3 wks to monitor progress!

I’ve also submitted a repeat prescription so that is the meds taken care of, the only thing outstanding now is the result of the swab taken of the infected pin Thursday. the GP told me we’d only here if it was bad news but you never quite know how long you should wait before assuming all is well! My course of antibiotics finishes Thursday so I’ll call her then to discuss the situation and ask if I need to continue with a further course.

The good news is lengthening has continued and so I’m very nearly half way through this phase with 12mm so far. Although we don’t yet know if the bone has grown at the same pace yet!

For the last few days I’ve been feeling very positive and happy so the contrast with my glum disposition today is all the more obvious.

The infection appears to be improving at least. During the daily pin cleansing and dressing this morning it certainly looks like the infection around the pin is receding which if true is great news but despite this I can’t shake the mildly depressed feeling I have woke with. I’ve been snapping at my wife and daughter. Given all they have done and are doing for me these are the last people I should be arguing with!

Part of it is possibly my first appointment with the Physio tomorrow. Although it is just an assessment I’m worried that they will mark my inability to raise my ‘bad’ leg onto a stool or into bed as poor progress. It’s difficult to know what I ought to be able to achieve by now but this is the one thing that means I am still heavily reliant on others for. If I want to get off the settee I need help to move my leg as I do when I sit down and the same applies for getting into/out of bed.

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